Welcome to the Ian Pratt MND Foundation. We are a volunteer managed charity supporting those diagnosed and living with Motor Neurone Disease (MND) in England and Wales.
Our mission is to bring joy and put a smile on the face of those living with this arduous disease every day.
Motor Neurone Disease, MND or ALS as it is also called, is a disease that progressively takes away the ability for one to control their muscles, sometimes slowly or sometimes quickly. Those diagnosed with the disease lose the ability to walk, to lift their arms to eat and drink, to talk, swallow and breathe. There is no cure.
On the 10th of September 2012 at the age of 42 I was diagnosed with Motor Neurone Disease. My diagnosis followed months of tests that were triggered by some muscle cramps and fasciculations dating back to 2008.
I am Ian Pratt’s wife and on a day in September of 2012 our lives changed forever when the Professor spoke the words that confirmed “in her heart of hearts” that he had Motor Neurone Disease.
I have no personal connection with Motor Neurone Disease, however, when I decided to set myself the challenge to swim the Solent in 2013 I chose an MND charity to do it for.
I am extremely honoured to be a trustee for the Ian Pratt MND Foundation.
Richard has been appointed as Director of Publicity and has an excellent track record in making a noise!
In June 2011 I got a phone call from my Dad in the Netherlands.